We are running to honour the memory of Stephen James Burns, who passed away on the 2nd May 2016 from an epileptic seizure at the age of 34.
We see this as an opportunity to raise money for Epilepsy WA for the much needed research into the condition.
Our target is $34,000. There is much to be done for the 25,000 people who live with epilepsy in this state.
One important issue that needs to be addressed is awareness in the workplace and in social settings of the daily struggle that adults with epilepsy have.
Stephen had his first seizure at age 28 while working abroad in London and was hospitalised for three days. He downplayed this event in his usual understated fashion. He returned to Perth and had another seizure and was then diagnosed as having epilepsy.
Stephen's seizures became more frequent over the following years and they became more violent in nature. On one occasion he woke the next morning with severe bruising to his face and a black eye. On another - he dislocated his shoulder.
Steve would often experience extreme exhaustion, which would take days to overcome, The constant anxiety and fear of the next seizure also caused Steve to develop depression. He initially found the restrictions on his lifestyle difficult to bear. Although he always managed to maintain his independence and employment. Steve was beginning to make some important changes to manage his condition himself.
Stephen was our third son with two older brothers and one younger. Not only were they brothers, they were the best of mates.
Putting into words how we feel about Steve can't possibly do justice to the kind of man he was. The chasm his passing has left in our lives has demonstrated what an incredible impact such a quiet and unassuming man had, and how his beautiful and gentle nature, rose above a room full of noise.
Please help us by giving whatever you can using the 'Give Now' button. The more people that know about Epilepsy WA, the greater their impact, so please also spread the word by sharing our page with your friends and family. Thank you in advance for your generosity, it means a lot!